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NHS England recently commissioned members of the LOCOMOTION study team at the University of Leeds and ELAROS digital company (pictured below) to evaluate patient outcomes in a sample of Long COVID services in England. This was conducted using data from the ELAROS Digital Patient Reported Outcome Measures (PROMs) C19-YRS platform, from the LOCOMOTION NHS clinical...
LOCOMOTION study recruitment reached 2,617 participants in September 2023! Study Workstream (WS) Updates WS1.1 (Quality Improvement Collaborative): Following on from the publication of our BMJ practice pointer on Orthostatic tachycardia after covid-19, our NHS sites have used the NASA Lean Test to test the prevalence of tachycardia on standing in Long COVID patients. Some of the Long...
LOCOMOTION study recruitment reached 2,544 participants in August 2023! New LOCOMOTION Publication: Workstream (WS) 2.1 of the LOCOMOTION study have published their protocol paper - Digital home monitoring for capturing daily fluctuation of symptoms; a longitudinal repeated measures study. WS2.1 is aiming to develop and examine the feasibility and usability of digital home monitoring for...
Our Chief Investigator (Dr Manoj Sivan) authored an article recently published in The Lancet - 'Venous insufficiency and acrocyanosis in long COVID: dysautonomia' The article details the case of a man with Long COVID who upon standing experiences a rapid purple/blue discolouration of his legs (acrocyanosis), which progressively feel heavy, tingly, itchy, and become dusky...
We're seeking people without Long COVID to participate in our study Some people with Long COVID (pwLC) have Orthostatic Intolerance (OI), a type of autonomic dysfunction in which people experience symptoms (such as dizziness, blurred visions, and palpitations) when they stand up, that are associated with a fast heart rate (HR) and/or a drop in...
Our Patient Advisory Group (PAG) created the content for the animation video below. It outlines: What Patient and Public Involvement (PPI) in research is and why it is important. How PPI is integrated in LOCOMOTION through our PAG and a Patient Advisory Network. The activities of the PAG and what this involvement helps achieve. Visit...
Dr Manoj Sivan (LOCOMOTION Chief Investigator) and Román Rocha Lawrence (Director of Research and Development at ELAROS), along with a Long COVID patient, have written an opinion piece on digital interactive Patient Reported Outcome Measures (PROMs) for long term conditions. Sivan M, Rocha Lawrence R, Francis E. Digital interactive patient reported outcome measures for long...
Mansoubi M, Dawes J, Bhatia A, Vashisht H, Collett J, Greenwood D, Ezekiel L, O’Connor D, Leveridge P, Rayner C, Read F, Sivan M, Tucker-Bell I, Ward T, Delaney B, Muehlhausen W, Dawes H, LOCOMOTION Consortium. Digital home monitoring for capturing daily fluctuation of symptoms; a longitudinal repeated measures study: Long Covid Multi-disciplinary Consortium to Optimise Treatments...
LOCOMOTION study recruitment reached 2,476 participants in July 2023! Work Package (WP) Updates: WP1.1 (Quality Improvement Collaborative) - Following on from the publication of our BMJ practice pointer on Orthostatic tachycardia after covid-19, our NHS sites have been using the NASA Lean Test to test the prevalence of tachycardia on standing in Long COVID (LC) patients. Our...
The innovative C19-YRS platform, developed by the University of Leeds and ELAROS 24/7 Digital company, is currently used by more than 30 NHS Trusts and used as the Patient Reported Outcome Measures (PROMs) platform in the LOCOMOTION study. In the videos below Dr Manoj Sivan, Prof Paul O'Brien, and Román Rocha Lawrence reflect on the...